Wednesday, November 28, 2007
Tuesday, November 20, 2007
We're Home!!!
The other good news is that, at this point, we are able to get pasteurized donor breast milk from a milk bank in Austin. Because Jack had so many food intolerances, and because I can't make enough milk, Ben's docs want him on donor milk. He's been getting free donor milk as part of a nutrition study at the hospital, but we weren't sure what would happen when we came home. We'll be receiving our first shipment of about 50 bottles of frozen milk this morning, so Bryant just ran to the store to buy a deep freezer! Now we just have to convince the insurance company to pay for the milk..... (We also want to thank our three friends who have already filled our regular freezer with pumped milk. What an amazing gift! You are truly impacting Ben's life.)
So the official stats:
Ben stayed in the hospital for 61 days.
He is now 38 weeks adjusted gestational age.
Today is his 2-month "birthday."
He weighs 5 lb. 12 oz., and is 18 3/4 inches long.
"Benjamin is a ravenous wolf; in the morning he devours the prey, in the evening he divides the plunder." Genesis 49:27
"Sons are a heritage from the LORD, children a reward from him. Like arrows in the hands of a warrior are sons born in one's youth. Blessed is the man whose quiver is full of them. They will not be put to shame when they contend with their enemies in the gate." Psalm 127:3-5
Sunday, November 18, 2007
Still here!
The oxygen really helped, of course, but they also documented that he has severe acid reflux. (More than 30% of the time, the pH in his esophagus is less than 4.0, so quite acidic.) We decided to take steps to control the reflux and measure his oxygen levels for a few days before making a final decision about taking him home on oxygen. So far, controlling the reflux by keeping him upright, lying him on his left side, etc. has made a huge difference in his oxygen saturation levels. We're hoping that when his regular doctor returns on Monday that we'll be able to go home!
Ben's feeding coordination is also maturing, and he's starting to take huge amounts of food. He weighs more than 5 lb. 11 oz.! He's generally very content and loves to be held so that he can look at new "scenery."
Can't wait to introduce him to everyone!
Wednesday, November 14, 2007
Ooops! Just Kidding!
So we were told that we would bring him home yesterday or today. We spent the past few days rushing about getting everything ready and disinfecting the entire house. On Monday, Ben's doc ran a few more tests just to make sure that everything was OK before sending him home. The results of one test were a little suspect--he had 65 episodes of low blood oxygen levels within an eight-hour period--so a pulmonologist was brought in for a consult. In the meantime, Ben's doc happened to be standing right next to him when he had a bradycardia episode (his heart rate dropped by half). I've seen this happen several times a day in recent weeks, but Ben's nurses never charted the episodes, saying that they weren't severe enough to be significant. Anyway, Ben's doc decided that, cosidering all of this, she was not comfortable sending him home.
The pulmonologist visited Ben again today, and she has recommended one of two options:
1. Ben can come home soon on supplementary oxygen and monitors that record his breathing and heart rate, or
2. Ben can stay in the hospital until he outgrows all of this.
Please pray that we'll make the best decision for Ben's health and safety! We want him to be safe, of course, but we're concerned that lying in a crib all day with so little personal interaction can't be good for his mental stimulation and development.
As you can imagine, we were heartbroken that we couldn't bring Ben home today. This was the first day that both of us felt downtrodden in all of this. Please pray for our continued stamina, peace, and wisdom.
The good news is that Ben is growing like a weed! He gained two ounces yesterday and now weighs 5 lbs. 8 oz.!
Thanks for your prayers!
Friday, November 9, 2007
Our Angels
Since all of this began, Bryant has joked that he feels like Job from the Bible--attacked from all sides. This week, he truly IS like Job, and he has the boils to prove it! He developed a nasty staph infection in the skin of his leg and backside, and has been in terrible pain. A visit to the doctor and several meds didn't work, so today he went to the hospital where they cut out the worst spots and gave him injections of antibiotics and pain meds. He'll be in a lot of pain for several days, but the infection should improve quickly. The ER docs said that they are now seeing about six cases of this staph infection DAILY! Ten years ago, they might only see a few cases each year. Praise God that Bryant's is treatable and not that horrible MRSA bacteria we've been hearing about in the news. This may delay Ben's homecoming, currently scheduled for Tuesday, so pray for quick healing.
I really do believe that we are under spiritual attack, but that God is protecting us. This was confirmed recently in a very strange and wonderful way. One night this week, Jack and I were eating dinner when he began to dart his eyes and head around like he was looking at a bug fly around the room. He started laughing and said, "It's so bright! It's so bright and shiny!" His eyes settled on a spot out in the middle of the room, and a minute later, he laughed and said, "He's funny! He's so funny!" I didn't give it a whole lot of thought until the next morning.
When we got in the car, Jack looked into the back part of our SUV and said, "He rides in there." I replied, "No, you ride in your car seat," to which he replied, "No, HE rides in there!" A bit perplexed, I ignored his comment. But a few minutes later, as we drove up the ramp onto the HOV lane, Jack shouted, "We go up! HE goes up! The angel flies!"
As you can imagine, I was floored. I felt such a sense of peace, and praised God for hours that He would so vividly confirm His answer to my prayers. From the very beginning of this roller coaster ride, I've prayed for God to surround our family with His angels and protect each of us, especially since we are often all separated, driving late at night, etc.
And to top it all off, when we went to church on Wednesday night, we pulled into a parking space right next to the glass church doors, and Jack pointed at the doors and shouted, "There the angels are!" And of course, there was no one there that I could see.
So despite all of the junk that's been thrown our way recently, we really are fine. We are not overly stressed, afraid, or worried, and we are growing closer as a family. I can honestly say that at this point, we are peaceful--and that's not my normal state. But this is a wonderful way to live!
"Therefore, since we have been justified through faith, we have peace with God through our Lord Jesus Christ, through whom we have gained access by faith into this grace in which we now stand. And we rejoice in the hope of the glory of God. Not only so, but we also rejoice in our sufferings, because we know that suffering produces perseverance; perseverance, character; and character, hope. And hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us." --Romans 5:1-5
Recent Ben Pics!
Here's Ben in his cutie patootie Halloween costume, next to the tiny pumpkin we picked for him at the pumpkin patch.
And thank you Aunt Patricia for crocheting Ben's gorgeous blue blanket. As you can see, he's really enjoying it.
Ben weighs almost 5 lbs. now and is starting to look like a "normal" baby. He's even starting to grow a little bit of a butt, and he has a tiny double chin! Woo hoo!!
Monday, November 5, 2007
Counting down the days!
On the home front, we're feeling a little more prepared now (and a lot less worried about the things we don't have ready yet). We've taken our infant CPR class and have gotten more practice feeding Ben and watching for breathing or heart rate problems. I think we'll be ready enough whenever the docs tell us we can bring Ben home.
Thanks for your continued prayers! We can't wait to introduce everyone to our little man!
Saturday, October 27, 2007
Great news! (and a little scary...)
If Ben continues to progress on this path, his doc said he may be able to come home in ONE TO TWO WEEKS!!!
Yikes! After "planning" for Ben to be home around the end of November or early December, I feel very unprepared for him to arrive early (again). Actually, I'm scared to death of the responsibility involved with caring for a tiny preemie. What if I can't feed him correctly and he chokes? What if Ben has an apnea episode (stops breathing), and we don't catch it in time? What if Jack accidentally sits on him?! The fears are endless...
And we're completely unprepared in every other way, too. We haven't even started to prepare Jack's "big boy" room so that Ben can have the nursery. I'm not really sure where our bottles, swing, bouncy seat, etc. are. And I lent out all of our burp cloths and swaddling blankets to people who were planning to return them next month. We don't have a double stroller or a baby carrier. All-in-all, I'm a horrible, unprepared, disorganized mom.
And I'm so excited that I may soon be able to hold my baby boy all day long without beeping machines and poking nurses and other crying babies everywhere.
I know all the other stuff will work itself out. God has cared for us in amazing ways thus far, and He will continue to meet our needs as they come. My house will be a wreck for many more months, but my family will finally be together and whole.
Monday, October 22, 2007
A Great Week for Ben!
Thursday, October 11, 2007
Visiting Ben
Texas Children's Hospital
West Tower, Level II NICU
Bed F117
Wednesday, October 10, 2007
My Handsome Boy!
It's been one month since this whole thing started!
I've been feeling a little under the weather, so my mom was Ben's designated holder. He was so warm and content that he actually smiled several times! Ben's new doctor walked by and commented that it was wonderful to see a grandmother doing "kangaroo care" (holding skin-to-skin). He whipped out a camera and took pictures of Mom and Ben to show how happy kangaroo care makes preemies.
While spending quality time with Jack today, it struck me how very fortunate I am. Most moms don't get one-on-one time with each of their children right after they have a second baby. But I can go to the hospital to snuggle with Ben, then come home to play rockets and trains with Jack. Last night, I listened in awe as Jack gave an entire monologue about how a fireman would come to our house to push the buttons on our TV and fix it so that he could watch Mickey Mouse again. (Our TV isn't broken--I just told him that we needed to quit watching so much TV.) After dinner, we sat on the grass outside to wait for the fire truck. It was a fun parenting moment that I probably wouldn't have experienced had Ben been home with us.
And yet I'm confident that Ben WILL come home--many of the NICU parents can't hold that hope. It's a blessing to have a small, healthy baby, rather than a larger, very sick child. It's like we're watching the miracle of creation right before our eyes! I'm getting to see what normally happens to a baby in utero during the last trimester. Every day Ben changes--his skin thickens, his eye color brightens, his hairline moves, his fingernails grow, and he looks more and more like a "real" baby. I am watching God knit together my sweet son, and I am amazed.
Monday, October 8, 2007
On the Road Again!
Late in the afternoon, a space finally opened up in the Level 2 NICU, and Ben rolled down the hall in his little isolet to his new digs! He's now in bed F117. Praise God for continued improvements!
Thursday, October 4, 2007
Ben and His Elephant
Arrrggghhh!
These verses really speak to me this morning. We've had a few additional issues for which we covet your prayers. Someone broke into our car last night, smashing out a window. They didn't steal anything.....but then again, why were they foolish enough to break into a Hyundai?? Bryant and Jack are sick, and I may have an infection in my incision site. And our kitchen sink hasn't worked for several days. All of these things are small and temporary, but they just add to the stress level.
Now for the good news! Benjamin is doing very well. He has continued to do well without breathing assistance, and they've now changed his feeding tube to a very thin one in his nose. (The thicker feeding tube he had in his mouth was uncomfortable and interfered with sucking his little pacifier, etc.) He now weighs just over 3 pounds (1370 grams), and if he continues on this course, we could move to the Level 2 NICU sometime in the next week! Praise God!
Wednesday, October 3, 2007
He may be little, but he's mighty!
JACK as a newborn with DADDY
Sorry that I haven't posted updates for the past few days. There's really been nothing new to report. But now we have good news!
Our little Mighty Mouse is doing well. Yesterday, Ben's nasal c-pap was removed and he was put on the nasal cannula for a few hours before they decided he could do without it. So at least for now, he's breathing completely on his own! His IV was removed a couple of days ago, so if he continues to do well for the next several days, he could be moved to the Level 2 NICU to just "feed and grow!"
It was wonderful to really look at Benjamin without all of the equipment on his face. (He'll keep his little mask until he no longer needs his feeding tube.) I looked back at Jack's newborn pictures and realized just how much Ben resembles his big brother! Ben even likes to peek at us with one eye, just like Jack did.
I've received a lot of calls and emails asking how the rest of us are doing.....
--Jack is starting to have separation anxiety and cries whenever he thinks I'll leave him. But he's happy enough as soon as I'm gone, and seems to be handling all of this remarkably well.
--Bryant has just started a new position at work, in addition to keeping up with his MBA assignments. I'd say he's dealing with the most stress of any of us.
--I'm healing well and on very little pain medication. Other than being tired all the time, I'm fine. I spend a lot of time at the hospital holding Ben as much as I can, then I'm up all night long to pump milk. Please pray for my milk supply to improve so that I can keep up with his growing appetite!
So we're all doing well. Thank you for your continued prayers!
Saturday, September 29, 2007
Benjamin is doing well
They were able to remove Ben's umbilical cord arterial and venous lines, so he can now sleep on his belly--much happier. He does not need a PIC line at this time, so he'll receive supplemental fluids through a normal IV line in his hand. Almost all of his nutrition is coming from milk via the feeding tube. He's tolerating his feeds very well and has maintained his weight at 2 lbs. 14 oz.
I'm continually amazed by how strong our little Ben is. The other day, his nurse had to postpone a procedure because Ben was fighting her so adamantly. She said it was the first time that she has wrangled with a preemie and lost! He's our Mighty Mouse!
Wednesday, September 26, 2007
We're Home!
We came home from the hospital late Monday night. Yesterday, we spent the day running errands and putting the house back together, and we enjoyed a wonderful visit with Benjamin. We held him for the first time wrapped up in a mountain of blankets--all we could see were his little eyes. He was rather uncomfortable the whole time we were there because the docs kept having to adjust things on him. His breathing was somewhat labored, so he's back on the nasal c-pap for a few days.
Today, we spent some restful time at home with Jack, then we went to see Ben this evening. He had a much better day today--more comfortable--and I was able to hold him "kangaroo style," skin-to-skin! I finally felt like his mother, since I could comfort him. He slept on me for an hour or so before he had to return to his incubator. I spent most of that time praying over him and felt so much peace about the state of our little guy.
For those of you who want details: Ben is on the nasal c-pap (blowing positive pressure to keep his breathing passages open), and his oxygen needs vary anywhere from 21% (room air) to about 50%. His lungs still show a couple of slightly cloudy spots, indicating possible pneumonia, but his blood culture and spinal tap show no infection. He's receiving 10 cc's of milk every three hours through his feeding tube and is tolerating it fairly well. They hope to remove his umbilical arterial and venous lines in a few days and insert a PIC line (inserted into a peripheral vein, leading all the way to the heart) so that he can receive more concentrated nutritional fluids through a more secure line. He has not lost much weight and is now 2 lbs. 13 oz.
That's all for now! We'll post recent pics ASAP. Keep praying!
Monday, September 24, 2007
Ben starts tanning
Saturday, September 22, 2007
Good Day for Baby Ben
The best part of the day was when Bryant and I visited Ben late this afternoon. I touched Ben's little hand, and he held onto my finger for a long time. It was my first real touch with my sweet boy--a very special moment.
Friday, September 21, 2007
Baby Ben has Arrived!
St. Luke's Rm. 2535
832-355-4668
Wow...yesterday was a whirlwind. I woke up at 3:15 a.m. with a really strong contraction lasting about 10 minutes. That settled into an hour of the sharp pain in my lower left side, followed by 1.5 hours of regular contractions. Then it all stopped! My perinatologist did an ultrasound and said that Ben was fine, and there was still no sign of the source of the original bleeding. I was told to lay still and avoid contractions (of course!). :)
A little later, the contractions started again--intermittent and not very painful. But since Ben was breech and delicate, my docs decided that letting me go into full labor would be a bad idea. So they scheduled me for an immediate c-section.
Benjamin Allen Adkins was born at 10:49 a.m., 2 lbs. 15 oz., 15.5 inches long. He did not breathe immediately, but once they took him to the little NICU area next to the operating room, he cried, kicked, and peed on a nurse. They said he almost kicked himself right off the table! I was able to see him for a few seconds before he was whisked off to the NICU. He has dark, curly hair (like Bryant's), a round face like Jack's, and long limbs. I haven't seen him since, but I've seen some pics.
My surgery experience was less than fun. My spinal/epidural combo wasn't placed quite right, so I felt way too much of the surgery. I received 6 injections of pain meds during the surgery, to no avail. Because Ben was breech, and because the placenta covered the entire front part of my uterus, my doc had to do a long U incision through the placenta, and I lost a lot of blood. Yesterday was pretty painful, but thanks to the miracle of medicine, I'm in a lot less pain this morning!
Ben is doing well. At first, he only needed a nasal c-pap to push a little air into his nostrils and keep his breathing passages open. Then yesterday afternoon, they decided that he needed a respirator, and before long, he required 80% oxygen. (Fairly normal for a preemie his age.) Praise God, he's down to 21% oxygen (same as room air) and less pressure on the respirator. This bodes very well for his ability to get off the respirator altogether. He's also been given artificial surfactant for his lungs, dopamine to raise his blood pressure, and antibiotics to fight infection. All-in-all his prognosis is good. We'll know more today.
I'm enjoying real food again and will spend the day trying to move around so that I can get to the NICU to see Ben as soon as possible. We probably don't have the energy for visitors today, since Bryant is running back and forth to the NICU--perhaps tomorrow. Calls are welcome!
Keep praying! I'll post pics of Ben ASAP.
Wednesday, September 19, 2007
Interesting Day
And for those of you who've been asking, I passed my 3-hour glucose tolerance test with flying colors. Turns out, I failed the first test because the nurse gave me too much sugar solution to drink. Ah well...good to be safe.
Lastly, THANK YOU to all of you ladies from church who purchased a gorgeous set of preemie clothes for Benjamin!! What a lovely surprise! It will be such a treat to dress little Ben up in those outfits.
No Pain, No Gain
At this point, we don't know the cause of the pain. There's no sign of uterin rupture or placental abruption. Benjamin has been on continuous monitoring and looks perfect. I should see my perinatologist today to see if he can shed some light on the situation. Either way, I'm just thrilled that the pain is gone and that we didn't have to deliver Ben last night!
Thanks for your continued prayers. They're working! Please pray especially for Bryant who is extremely stressed right now. He's trying to keep up with work, school, and taking care of Jack and me--while getting very little sleep or time to study. He rushed out of class last night when my pain started and made it to my hospital room in 16 minutes! (So pray for his safety as well...) Thank you to all of you who are helping him out in so many ways.
Monday, September 17, 2007
Good News
We were relieved to hear that this is probably just a continuation of the original problem--not a new problem. My doc said that statistically, if I can make it one more week (to Sunday), then I will likely be able to make it to 32 weeks! And just for the record, Bryant offered to buy me a diamond if I can make it to 32 weeks. Now that's motivating!! :)
I barely "failed" my blood glucose tolerance test today, which determines whether I'm developing gestational diabetes. So I'll take the more-detailed 3-hour test tomorrow morning. My doc joked that, since women with gestational diabetes tend to have larger babies who produce more amniotic fluid, perhaps she should allow me to be diabetic! But she was just joking....
More Bleeding--Please Keep Praying
Yesterday was great for most of the day. I felt so good that I dressed in my own clothes for the first time since arriving here, and I was so glad I did. A whole slew of visitors came by, including a group of my girlfriends from church who threw me a surprise party! (By the way ladies, everyone here has really enjoyed all the goodies you baked.)
I had almost no bleeding or leaking all day and was feeling great. Then around 6:15 p.m., I started bleeding heavily again. We've monitored the situation all night, and the doctors aren't worried yet. They're monitoring my blood counts to make sure I don't lose too much blood, and Benjamin still appears to be in fine form. I'm having small, painless, occasional contractions, but I'm not going into labor.
Please keep praying! If we can make it to the two week mark, then odds go way up that we can stay here much longer before Ben is born.
Friday, September 14, 2007
Still here!
Thursday, September 13, 2007
Another good day....
I met with the neonatologist today about Ben's prospects. We talked worst-case scenario, but it wasn't too scary. Our conversation was very motivating--makes me want to lay flat, cross my legs, and not sneeze! Ben might face some serious challenges, but on the other hand, he could do very well. I find myself praying over ever little bit of his body--his brain, eyes, heart, lungs, GI tract, etc. I know that God is carefully knitting him together according to His will and plan.
Please continue to pray for our little family. Bryant is working hard to keep up with work, school, and this whole situation. Jack is having a wonderful time bouncing from place to place with all of his favorite people, but I think it's starting to set in that Mommy's not coming home. He's a little clingier every time he comes to visit.
That's all for now! Thanks for your prayers, calls, emails, and visits. They are really helping.
Wednesday, September 12, 2007
Life is good!
1. I got to take a shower!
2. I get to eat solid food!
3. My sweet Jack came for a visit and snuggled next to me in bed while we ate lunch.
4. A very well-known perinatologist did another ultrasound and said that Ben looks great right now. (more details below)
5. Today is Bryant's 34th birthday!!!
So here's the nitty gritty for those of you who like details....Ben's weight is still estimated to be 2 lbs. 9 oz. (50th percentile). All of his organs look great, including his lungs. I have almost no amniotic fluid left, although it replenishes and leaks out in batches. Despite this, Ben seems just fine. 80-85% of women whose water breaks at 28 weeks deliver within the first week. 90-95% deliver within two weeks. The remaining 5% can go much longer. (Pray that we're in the third group!) If I had the c-section today, Ben would have an 80-85% chance of survival without significant neural defects. Praise God!!
The perinatologist commented that he's very happy to see that I'm calm and in positive spirits, whereas he comes across other mothers who are climbing the walls with worry. He said that staying calm is the very best thing I can do to help Ben stay put. I started to explain that this peace comes from prayer, an understanding of God's power and grace, and the calming influence of the Holy Spirit. (Plus the prayers and support of our amazing network of friends and family!) I don't think he cared for my opinions, but it was a nice conversation! Please pray that God will use our family to minister to those around us in this hospital and at Texas Children's after Ben is born.
A neonatologist should stop by this afternoon to talk about Ben's prospects. I'll try to post an update about that conversation.
We've Moved!
Antepartum Unit, Room 334.
832-355-3645
Visiting hours are completely open, and children/babies are welcome!
So come on down!
Other good news for today....
--I'm allowed to get up to go to the bathroom and take short showers.
--I had another ultrasound, and Ben seems to be doing fine. He's breech with his legs crossed straight up in front of him by his face, so a c-section will be necessary.
--My amniotic fluid is still very low, and I'm still bleeding some, but now that we are past the 48-hour mark, things are looking up. If we can make it a week, then we will likely make it much longer--and every day counts!
Please continue to keep us in your prayers, and THANK YOU to everyone for your kind emails, calls, visits, etc. We are so blessed to have such great family and friends.
Tuesday, September 11, 2007
Let's take this show on the road!
We'll keep everyone updated on new contact information, but you can always reach us on our cell phones (listed below).
Thanks for all of your prayers and support! The hospital staff has commented several times on how wonderful our support network has been. They can't believe how many phone calls and visitors we've had already!
Love,
Dawn
Monday, September 10, 2007
If you'd like to help ....
Contact Information
Willowbrook Methodist, room 2232. It's at 249 and 1960. You can just follow the Hospital signs off 249. Parking is free. We're taking visitors, Dawn is really doing well. Do call before you come.
Dawn's Cell: 281 468 8664
Dawn's email - expect slow turn around: pdadkins@sbcglobal.net
Bryant's Cell: 281 702 0942
Bryant's E-mail: john.b.adkins@rice.edu
Status To Date - 11 a.m. Sept. 10, 2007
Benjamin will be here soon, probably.
The Physicians do not know what is causing Dawn to bleed, so they will not try to stop it. Dawn is having erratic contractions, but the bleeding is much less severe now.
At this point, there are two likely scenarios.
1) Dawn becomes stable in the next few days, and we will be transferred to St. Lukes / Texas Children's Hospital to have baby Ben. This is preferred.
2) We'll have Baby Ben here in the next few days, and we'll transfer to the Texas Children's Hospital NICU later.
Ben's Status
He's about 28 weeks old (full term is 40 weeks). He has a very strong heartbeat, and the nurses guess that he currently weighs 2 Lbs. 9 ounces inside Dawn. Dawn is taking a steroid to help his lungs develop. Ideally, he'll get two doses plus 24 hours before he arrives. He is breach, so we will likely end up with a C-Section. Dawn's water broke, we think. There is still an amniotic sac, but there is less fluid in there than ideal. Ben has not reacted negatively to the loss of fluid, and the doctors will not speed the process along as long as that is the case.
Little Jack is with his Grandfather.